Maybe it’s permanent. Grounding that is.

Discussion in 'Medical Topics' started by denverpilot, Dec 14, 2019.

  1. denverpilot

    denverpilot Tied Down

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    Finally got the follow up scheduled with the neurologist. See them tomorrow morning.

    Meanwhile they’re ordering a lumbar puncture to go get some of my spinal fluid.

    Sounds decidedly un-fun. Well more un-fun than usual I guess.

    Got tired of looking at my home office so I went to the real office today. That got the right hand complaining so I gave in and took a small amount of the stupid drugs.

    Also tired of peeing after steroids but it’s better than not, since it means the kidneys are still behaving. Drink water, pee, drink water, pee. Annoying.
     
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  2. JOhnH

    JOhnH Touchdown! Greaser! PoA Supporter

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    @denverpilot I"m sick of your whining and complaining. You think YOU have it bad? I live in Florida and my airplane doesn't have air conditioning! So TOP THAT!


    ( I hope you can tell I'm kidding) I thought a little levity was in order. Not that I think anything about your situation is funny, but your attitude deserves an award.
     
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  3. denverpilot

    denverpilot Tied Down

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    Dude. I wouldn’t wish Florida heat and humidity in a closed cockpit on anyone!! LOL.

    Jokes are totally fine. Y’all know this.

    They just want the spinal juice because it’s like maple syrup from an old ass tree.

    They feed it to the aliens at Area 51 I think.
     
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  4. Half Fast

    Half Fast En-Route

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    upload_2020-1-14_18-11-4.png
     
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  5. denverpilot

    denverpilot Tied Down

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    Update ... steroids helped but slow reappearance of neuro symptoms afterward.

    The news from the assistants was a little off.

    Ping @bbchien since I suspect he will be interested in this.

    So... what the neuro saw on the MRI is my one enormous lesion hasn’t gone “dark” with contrast like expected after a half a year on the MS drug. Normally after the MS drugs the spinal cord settles down and the equivalent of scar tissue forms and the inflammation goes down. So she’s concerned that it’s still very active. It does look like it maybe shrank a couple of vertebrae.

    So next step is analyze CSF to see if any infectious markers, virus, cancer, etc that would cause a continuation of this long long “inflammation attack”. The key thing for me seems to be continued whole body inflammation. Hunting for a cause.

    Also doing a referral for another opinion at University of Colorado Health. Our weird high incidence of MS here means pretty good docs in that field of study here.

    Had some travel planned soon and she cleared me for that with an oral steroid pack if any acute neuro symptoms seem to pop up. Take those and get back home if it gets weird.

    Awaiting scheduling for the lumbar puncture. Might be before or after trip. Not a rush.

    Interesting follow up, for sure.

    Hope everyone has a good day today!
     
  6. steingar

    steingar Taxi to Parking

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    Would you care to elaborate? Perhaps a cross country relocation might ameliorate your symptoms?
     
  7. Half Fast

    Half Fast En-Route

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    Well, it's Denver, so it might be something in the air......
     
  8. gkainz

    gkainz Final Approach

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    I've heard that there are a number of medical oddities that have significantly higher than the norm here in Colorado.
    My wife has an acoustic neuroma and her doc says this area is significantly higher than the national average by a large number.
     
  9. TCABM

    TCABM Cleared for Takeoff

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    You need to get in to this guy’s practice.

    [​IMG]
     
  10. Kenny Phillips

    Kenny Phillips En-Route

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    Closer to the sun?
     
  11. gkainz

    gkainz Final Approach

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    That's one theory on the acoustic neuroma ... even higher numbers up the mountain towns than down here on the prairie


    And then there's the "closer to Rocky Flats" and "closer to Rocky Mountain Arsenal should have been/maybe was a Superfund cleanup site")
     
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  12. denverpilot

    denverpilot Tied Down

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    They just watered the grass with plutonium water. What’s the big problem?! LOL.

    Not to mention the incinerators...

    The history of Rocky Flats is fascinating and sad. The Grand Jury eventually all came out with what they learned even after being told if they spoke about it, they’d be tried as traitors...

    Ironically my employer does business with a company that specializes in home care for the many many people hurt by that industry.

    They opened an open space trail through the edges of the place. I won’t be hiking there. Fairly controversial in the local news.
     
  13. denverpilot

    denverpilot Tied Down

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    Like Greg said, just statistics. Denver has a statistically higher incidence of MS than most cities.

    Theories vary about why.

    They probably won’t vary someday ... once someone understands the mechanisms of MS... :) Then it’ll make sense.

    Kinda like nobody fully knows why spinal cord patients often end up ridiculously low in Vitamin D over time, more than a forced indoor lifestyle for some percentage of that population might indicate.

    All sorts of weirdnesses with spinal stuff.

    I spend way too much time reading papers from the Mayo. Haha. Always been a “boring” reader... love stuff like tech papers and accident reports... so I just added learning medical jargon and reading their papers to my reading list. LOL.

    My doc says I have “good questions”.

    I think that’s code for “Yeah yeah, I know I know, we already checked that, but you’re correct to ask...” :)

    It was fun to read a Mayo paper from 2014 targeted at teaching docs how to diagnose all these maladies. And also reassuring to see my doc hadn’t skipped any steps including some of the very newest tests.

    We see people on our support group all the time who’ve had acute attacks and went to a typical ER and weren’t treated with steroids, weren’t recognized as neuro patients, all sorts of awful misdiagnosis in initial assessments... having something rare happen to you that expresses as very non-specific symptoms can be a huge problem for docs. Also can delay important early treatments.

    It’s wild what we see folks share there. Rare disorders are hard for the front lines of an ER. If paralysis results they get a neuro involved and it goes well. If less than paralysis — maybe a neuro, maybe not... with varying results that have more to do with timing of when a neuro gets involved.

    Usually it’s at the “oh crap” MRI point in time, like mine was. Up until that point it was thought to be an orthopedic problem. :)

    The ongoing joke in the group is the day you were diagnosed js forever known as your “crapiversary”. LOL. People share their onset story and we all yell virtually, Happy Crapiversary! :)
     
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  14. Everskyward

    Everskyward Administrator Management Council Member

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    I have been reading a book called "Slow Medicine". It isn't a technical book as much as it's a doc's journey from medical school through residency. One thing she learned early on, from an experienced doc, was that the key to good treatment is a correct diagnosis, and taking the time to find it, which is difficult in the era of 15 minutes per patient. It's probably worse in the ER. She's about my age, so she's seen many changes in the way medicine is practiced.
     
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  15. gkainz

    gkainz Final Approach

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    Yeah, BTDT ... I built and worked on a number of their Oracle databases back before the shutdown and on into the cleanup/shutdown years.
     
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  16. jonvcaples

    jonvcaples Pre-takeoff checklist

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    Nate and Karen know you are not alone. You are held tightly in the thoughts, prayers, and hopes of many and us in particular.

    Jon and Jeanie
     
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  17. steingar

    steingar Taxi to Parking

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    Our EAA chapter had a presentation about Angel Flights. The big conclusion was "don't get sick in a small town".
     
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  18. denverpilot

    denverpilot Tied Down

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    Yeah. The rat colonies do have their perks when it comes to higher concentrations of medical rats. LOL.

    So far being about a half an hour outside of one has been about the best balance point I can handle.

    Karen travels to a couple of rural hospitals a year teaching nurses about the latest in wound care. She says they’re always very appreciative and amazed at her photos of what a specialized wound care clinic can accomplish. (Hers is even equipped for hyperbaric chamber treatments for the patients who’s wounds and bodied respond better to high oxygen levels.)

    Also quite a few more truly ADA compliant rat buildings there.

    I chuckled at the disaster of modifications someone had to come up with to make the rural license plate office (that’s in an old bank but used to be in the 1800s vintage courthouse) “accessible” when I went to get the handicap placard.

    Calling it truly wheelchair accessible would be a stretch, but it probably met the letter of the law.

    I suppose us rednecks would just modify the chair with knobby off road tires and a Cummins diesel and it would be able to go over the door jams and such of a messed up building like that one. Hahaha.
     
  19. Half Fast

    Half Fast En-Route

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    Paging @Ted DuPuis .......
     
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  20. wsuffa

    wsuffa Touchdown! Greaser!

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    I do hope it goes well.

    For a very small number of people (or if they do it wrong), it can turn into a spinal leak. Which is even more debilitating. I've followed this person on Facebook and her website for a while.... https://www.legalnomads.com/spinal-tap/
     
  21. Ted DuPuis

    Ted DuPuis Administrator Management Council Member

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    First off, I don't know how I missed this thread until @Half Fast tagged me. I've been following Nate's progress on Facebook but this is a lot more detailed. Nate, I'm really sorry this is happening.

    We haven't had any sort of major medical issues in our household (fortunately), but I've noticed the same thing. These days nobody wants to prescribe antibiotics because of overprescription when I was a kid. They also won't take the time to try to actually diagnose what's going on. So what ends up happening is you have to be sick for a month before they'll prescribe anything, because it's a 15 minute look-see and "It's probably a virus or allergies. Have some Zyrtec. Oh that didn't work? Well keep trying and just wait longer."

    None of this is life-threatening, of course, but it is annoying. We've literally had to go a month or more of being sick and having something progress to the point of pneumonia before getting a prescription.

    I'm in if we can get the required parts together. Should we make a new "Building Nate a Roll Coal Wheelchair" thread?
     
  22. steingar

    steingar Taxi to Parking

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    Mrs. Steingar got a lumbar injection once. Wasn't happy for her, and watching I just about lost my lunch.
     
  23. denverpilot

    denverpilot Tied Down

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    You definitely wouldn’t like Karen’s favorite photos from an outpatient wound care clinic, then. LOL. :)
     
  24. DavidWhite

    DavidWhite Final Approach

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    Yep!
     
  25. JOhnH

    JOhnH Touchdown! Greaser! PoA Supporter

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    Is "roll coal" millennial speak for what us boomers may call "real cool"?
    Regardless, I"m in. How can I help. @denverpilot deserves the coolest wheel chair in history. I think it should have dual exhausts, even if it is only synthesized audio.
     
  26. denverpilot

    denverpilot Tied Down

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    I appreciate the sentiment on the wheelchair, but if it’s all the same to you guys I’d rather not have one!!!! :)
     
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  27. Benw

    Benw Pre-Flight

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    Amen, not needing a wheelchair is the best option
     
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  28. murphey

    murphey Final Approach PoA Supporter

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    I've been known to pass out with a cortizone shot....I pitty the fool who has to give me a lumbar injection...
     
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  29. Ted DuPuis

    Ted DuPuis Administrator Management Council Member

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    Agreed, that's everyone's hoped for outcome for you. :)

    Just know that if you want us to make you a cool rolling coal vehicle to help with your mobility, I'll do what I can to make that happen.
     
  30. jsstevens

    jsstevens Final Approach PoA Supporter

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    I’m in. If it’s needed. Praying it’s not.
     
  31. murphey

    murphey Final Approach PoA Supporter

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    JATO option?
     
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  32. Half Fast

    Half Fast En-Route

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    Not an option. Comes bundled.
     
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  33. Craig

    Craig Line Up and Wait

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    Cummins powered Segway maybe???:p
     
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  34. denverpilot

    denverpilot Tied Down

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    You guys are making me laugh today.

    Neuro and other symptoms came back with a vengeance but had a lunch scheduled with an old friend and boss who’s a tool nut. I at least managed to make it to that meet up.

    He made me a cane. Haha.

    [​IMG]
     
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  35. Ted DuPuis

    Ted DuPuis Administrator Management Council Member

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    #bandozer
    I was thinking something like Jay's Boss Hoss 305 Chevy-powered bar stool, but yeah with a Cummins of some sort since Nate's a Cummins fan. An L10 or a Big Cam 400 would be ideal, but I think those weigh in at something like 1500-2,000 lbs. Even a 6BT or the baby 4BT is in the 1,000 lb range, but that can still be worked with.

     
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  36. wsuffa

    wsuffa Touchdown! Greaser!

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    I think making a person-carrying drone might be more fitting for Nate as opposed to rolling coal. But Ted's last suggestion works too...
     
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  37. overdrive148

    overdrive148 En-Route

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    I heard the word drone and came as fast as I could!
     
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  38. Ted DuPuis

    Ted DuPuis Administrator Management Council Member

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    [​IMG]
     
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  39. Craig

    Craig Line Up and Wait

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    I hope that we, the collective of POA, can always inject a little levity and make you have some good thoughts and enjoyment and help take some of the edge off of "those type" days.:)
     
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  40. Justin M

    Justin M Pre-takeoff checklist

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    Pulling for you!
     
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