I have CMT disorder. It is a rare, inherited and incurable degenerative nerve disease. My Dad developed it about 20 years ago and how he can barely walk without a cane or walker. He is 92 and is practically confined to his easy chair, even though he is otherwise healthy and mentally sharp as a tack. He was older than I am when he was diagnosed, He had no idea he was at risk for this and since it is rare, it was not detected early and before his diagnosis, he underwent several (unnecessary as it turned out) surgeries. I have an appointment with my Doctor, who I will have refer me to a neurologist for proper diagnosis. If I get to the point where I think I can't fly safely, I will self-ground, but I am looking for advice regarding my appointment. Are there drugs (pain killers) he may prescribe that would ground me? If he prescribes one, should I ask for a different one? Would I need to notify the FAA as soon as I have a diagnosis, or just report it when I go in for my medical next year? Does anyone know if there are any treatments on the horizon that can help? Does early detection help? Of course, I will be asking my doctor and my neurologist these questions, but I would like the perspective of someone FAA knowledgeable. I will of course be contacting Dr. Bruce if it comes to that. I'm hoping for the best but preparing for the worst. At least, this isn't a fatal disease.